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Respite care is the provision of short-term, temporary relief to those who are caring for family members who might otherwise require permanent placement in a facility outside the home.
Respite programs provide planned short-term and time-limited breaks for families and other unpaid care givers of children with a developmental delay and adults with an intellectual disability in order to support and maintain the primary care giving relationship. Respite also provides a positive experience for the person receiving care. The term "short break" is used in some countries to describe respite care.
Even though many families take great joy in providing care to their loved ones so that they can remain at home, the physical, emotional and financial consequences for the family caregiver can be overwhelming without some support, such as respite. Respite provides a break for the family caregiver, which may prove beneficial to the health of the caregiver. 60% of family caregivers age 19-64 surveyed recently by the Commonwealth Fund reported fair or poor health, one or more chronic conditions, or a disability, compared with only 33% of non caregivers.
Respite has been shown to help sustain family caregiver health and wellbeing, avoid or delay out-of-home placements, and reduce the likelihood of abuse and neglect. An outcome based evaluation pilot study showed that respite may also reduce the likelihood of divorce and help sustain marriages.
There are various models for providing respite care.
In-home care is popular for obvious reasons. The temporary caregiver comes to the regular care receiver’s home, and gets to know the care receiver in his or her normal environment. The temporary caregiver learns the family routine, where medicines are stored, and the care receiver is not inconvenienced by transportation and strange environments. In this model, friends, relatives and paid professionals may be used. Depending on the state, Medicaid or Medicare may be used to help cover costs.
Respite (In-Home) Services means intermittent or regularly scheduled temporary non-medical care and/or supervision provided in the person's home. In-Home Respite services are support services which typically include:
Respite (Out-of-Home) Services are provided in licensed residential facilities.
Respite services typically are obtained from a respite vendor, by use of vouchers and/or alternative respite options. Vouchers are a means by which a family may choose their own service provider directly through a payment, coupon or other type of authorization. For more information about respite services contact your regional center representative.
Another model uses a specialized, local facility where the care receiver may stay for a few days or a few weeks. The advantage of this model is that the specialized facility will probably have better access to emergency facilities and professional assistance if needed.
There may be the need for respite care on an emergency basis. When using "planned" emergency care, the caregiver has already identified a provider or facility to call in case there is an emergency. Many homecare agencies, adult day care, health centers, and residential care facilities provide emergency respite care.
Sitter-companion services are sometimes provided by local civic groups, the faith community and other community organizations. A regular sitter-companion can provide friendly respite care for a few hours, once or twice a week. Care must be taken to assure that the sitter-companion is trained in what to do if an emergency occurs while the regular care-giver is out of the home.
Therapeutic adult daycare may provide respite care during business hours five days a week. However, in some instances, this care may also be provided 24 hours a day.