Lorenzo Odone

From Wikipedia, the free encyclopedia - View original article

Lorenzo Odone
Born(1978-05-29)May 29, 1978
DiedMay 30, 2008(2008-05-30) (aged 30)
NationalityAmerican
Known forAdrenoleukodystrophy patient
 
Jump to: navigation, search
Lorenzo Odone
Born(1978-05-29)May 29, 1978
DiedMay 30, 2008(2008-05-30) (aged 30)
NationalityAmerican
Known forAdrenoleukodystrophy patient

Lorenzo Michael Murphy Odone (May 29, 1978 – May 30, 2008) was an American adrenoleukodystrophy (ALD) patient whose parents, Augusto and Michaela Odone, sought a treatment for the disease and invented Lorenzo's oil.[1]

He was also the subject of the 1992 film Lorenzo's Oil which starred Nick Nolte and Susan Sarandon.[2] Additionally, Phil Collins translated a poem written by Michaela to Lorenzo to music for the song "Lorenzo" in his 1996 album Dance into the Light.

Contents

Quest for a treatment

In 1984, when diagnosed with adrenoleukodystrophy, there was not much information available about this disease, let alone a treatment. His parents therefore decided to take matters into their own hands, and began researching myelin and adrenoleukodystrophy. They eventually invented "Lorenzo's oil", which they hoped would stop the progress of the disease. It is a mixture of olive and grapeseed oil.

Death

Lorenzo died at his home in Fairfax, Virginia on May 30, 2008, 26 years after his first diagnosis and one day after his 30th birthday, due to complications of aspiration pneumonia, with his father Augusto and his life long friend Oumouri at his side.[3]

See also

References

Further reading

External links